Keep Transplants Fair

A Collaboration for Donation Fairness

The Issue

Thousands of patients currently waiting for a liver transplant across the United States could wait longer or die waiting for the life-saving surgery if a new, proposed policy goes into effect. The proposed change redistricts the current 11-region system to an 8-region system, expanding the geographic areas in which a limited number of organs are allocated.

The “Redesigning Liver Distribution” proposal, if it passes, will have a drastic, negative impact on patients waiting for liver transplants across the United States. While the intent behind the proposal is to reduce wait times and wait list mortality rates, this change instead inadvertently creates a framework that:

  • produces lower quality organs as a result of longer transportation times between states
  • reduces long-term survival rates of liver transplantation
  • unfairly disadvantages minorities, lower socioeconomic candidates and those in rural areas
  • supports a system that artificially inflates MELD scores (which are used to determine a patient’s place on the transplant list), not actual lab values
  • drives up costs

More than 63 percent of states performing liver transplants have had transplant centers publicly oppose this proposal. Several polls of the transplant community have overwhelmingly vetoed the proposal’s measure for redistricting—but to no avail. If we don’t take action, donated livers will be sent from areas with high waiting list mortality to areas with low waiting list mortality.

How You Can Help

Submit your opposition to this proposal through public comment by October 15, 2016.

FAQs

Ultimately, this proposal reduces long-term survival rates of liver transplantation and would decrease the number of liver transplants performed by at least 200 per year. Other key points include:

  • Doctors in the Northeast grant MELD exception points to more than 40 percent of their patients. This artificially increases the MELD score required for transplant and leaves patients that do not qualify for exception points waiting until they are at death’s door for a liver transplant.
  • Livers will be sent from areas with high waiting list mortality rates to areas with low waiting list mortality rates. Also, the proposal inadvertently disadvantages minorities, lower socioeconomic candidates and those in rural areas, most significantly in states with high organ donation rates. The solution is to improve organ donation rates across the country, especially in New York.
  • The Southeast has a significantly higher burden of liver disease than the Northeast. Georgia, in particular, already suffers substantial health-related disparities including lower numbers of insured patients, fewer available doctors and higher rates of preventable deaths. This proposed changes only will add to these issues.

Finally, there is a huge conflict of interest within the UNOS (United Network for Organ Sharing) committee responsible for this proposal.  Not only is the leadership of this committee made up of a group of physicians from institutions that would benefit from the proposed model, the designer of the model and chief of model development is associated with programs that stand to gain from this proposal as well.

MELD scores are used to determine a patient’s place on the liver transplant waiting list. To fully understand this issue, it is important to understand that the laboratory MELD score is based on lab values shown to reliably predict the risk of death in patients with end stage liver disease. MELD scores range from 6 to 40. The higher MELD score, the higher mortality rate. The problem is that certain regions grant a lot of “exception points” to patients and these points artificially inflate MELD scores.

The 11 regions would be changed to 8 districts. Georgia will be part of District 1, which would also include Maine, New Hampshire, Massachusetts, Rhode Island, Connecticut, New York, New Jersey, Delaware, Maryland, Washington DC, Virginia, North Carolina, South Carolina and Puerto Rico. Within this district, we would share livers across state lines for patients with MELD scores ≥ 29.  Recipients within 150 miles of the donor hospital would receive 3 additional MELD points.

The United States is currently divided into 11 regions. Georgia is in Region 3, which also includes Alabama, Arkansas, Florida, Louisiana, Mississippi and Puerto Rico. Within Region 3, we share livers across state lines for patients with MELD scores ≥ 35. If there are no patients in the region with a MELD ≥ 35, livers from Georgia donors are given to Georgia recipients.

You can submit your opposition to this proposal through public comment by October 15, 2016 on the US Department of Health and Human Services (HHS) website.  TAKE ACTION

Congressional and Physician Support

Letter by Representative John Lewis regarding Liver Donations

Letter by Representative John Lewis regarding Liver Donations

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2016 Congressional Delegation HRSA Letter

Congressman Yoder’s 2016 Letter to HRSA

Congressman Yoder’s 2016 Letter to HRSA

HRSA 2016 Response to Congressman Yoder

HRSA 2016 Response to Congressman Yoder

2016 Transplant Surgeon Letter to HRSA

Congressman Yoder's Letter to HRSA

GA Congressional Letter to HRSA

2014 Transplant Surgeon Letter to HRSA

HRSA Response to GA Congressmen

Collaborative Partners

Emory University
University of Kansas Hospital
Piedmont Healthcare
University of Iowa
Children's Healthcare of Atlanta
Baylor Scott & White Health
Children's Healthcare of Atlanta
Baylor Scott & White Health

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Email Address  

Contact Us

For more information, please feel free to contact our collaborative partners by completing the form.

Reagan Cussimanio, Esq.
Government Relations Liaison
The University of Kansas Hospital
  Office   (913) 588-3174
  Mobile (785) 249-7371

Thomas Worthy, Esq.
Vice President
Government & External Affairs
Piedmont Healthcare
  Office   (404) 425-7339
  Mobile (678) 576-0922

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